Wednesday, October 20, 2010

Change of Plans

Well, we won't be having the bronchoscopy this week after all!  Grace got sick on Sunday, and then she had a red mark on her arm, so I decided to run her into the pediatrician yesterday.  Turns out the red mark was a burn-no idea how she got it!  But she sounded so congested in her chest, the doctor tested Grace for RSV, and she was positive!  Chloe most likely also has it,but only has symptoms of a cold.  RSV is basically a viral infection that can attack the respiratory system.  Grace is actually doing great and already seems to be getting better today, but we are having to reschedule the bronch :(  We're stuck at home for a few days since the girls are contagious...Chloe is very strong and healthy so she seems okay, and Grace is barely coughing at all now.  So we'll wait, and hope and pray we can manage to get to the second bronchoscopy without Grace getting sick again!

Saturday, October 16, 2010

Next step

It's been a few weeks (maybe a month?) since Grace's bronchoscopy, and while she got very sick and sounded terrible after the last one, we've seen great results!  Grace is now able to run around like any normal 2 year old without getting tired!  And she can run run run for HOURS without getting tired or even wanting a nap...not exactly the result I wanted :)  So it's been pretty great to see what a big difference removing the cyst has made! 

She's been getting steroids through an inhaler to reduce the inflammation in her vocal cords.  Next will be another bronchoscopy this coming Thursday to understand what is going on with her vocal cords.  Since Grace had a cold last time, the ENT wasn't sure if they were red and swollen due to that, or allergies, or something else.  So we could definitely use prayer for Grace to stay HEALTHY this week!  The ENT will also be checking to make sure the cyst isn't growing back at all. 

Grace had a really hard time coming out of the anesthesia last time, and she was in pain to the point she needed morphine.  I'm glad I know what to expect this time, but am hoping she will not have as hard of a time with it.  Looking forward to getting some answers and a plan for her vocal cords-she's such a smart, fun, creative little girl, and I just really want for Grace to be able to express herself vocally more than she can.