Well, we made our first trip back home a couple weeks ago! It was so great to see everyone, and watch Grace and Chloe with their grandparents and uncle. We had a few unexpected events, with Chloe getting a fever and ear infection on our first day in CA! 5 days later, Grace started coughing and getting a fever. Last Friday, I ended up in the ER with Grace having a temp of 104.5 and rapid breathing! It was pretty scary, and. I was thankful for a close friend meeting me at the hospital to keep me company. The doctors thought Grace had pneumonia intially and told me to plan on staying overnight! I think I had a little bit of PTSD at that point! Amazingly, Grace did not have pneumonia, and they sent us home with antibiotics and steroids. Sadly, she was still sicker than she's been since she was in the hospital 2 years ago, and we spent our last days in CA just hanging out at home. When we got home, Grace was diagnosed (by her own pediatrician) with a cold, an upper respiratory infection AND double ear infections! Really hoping and praying this isn't how we're spending our winter!
We celebrated Christmas with my family in CA, and we'll be having a nice, quiet day with the girls on Dec. 25th. We have (probably too many) presents to give, and I can barely wait until next Saturday to watch the girls get their Fisher Price kitchen from Gammie and Papa, and for Grace to open her 32 inch Minnie Mouse! Chloe, I think, will be most excited about the wrapping paper :)
Since Grace's last bronchoscopy was cancelled due to RSV, it's now rescheduled for January 10th, 2011! Since then, Grace has become part of Vanderbilt's C.A.D.E.T. clinic. I have no idea what it stands for, but we met with her ENT dr, a GI dr, a pulmonologist and a swallow specialist about a few weeks ago. It was a LONG appointment, answering alot of questions about Grace! The doctors all meet and come up with a plan, and they will all be involved in her next bronchoscopy. During that, the doctors will basically be testing for any hidden infections in her throat, lungs, GI area, etc. That process will take about 90 minutes. There is also some concern regarding Grace's swallowing, so she is having a Video Swallow Study (similar to what she used to have with the g-tube in) this next Wednesday at 12:45pm Central Time. We would appreciated prayers that they find no evidence of aspiration or any other swallowing issues!
Will post an update on Wednesday!
